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#autism

205 posts180 participants13 posts today

The echoes of 20th C fascism continue to echo - it is almost as though they are not merely echoes.

The first community to feel the genocidal wrath of the Nazi regime was the #disabled community. Deemed “unworthy of life” and inadequate contributors to the “master aryan race” #disabled people were targeted by the “T-4” or “#euthanasia” programme that systematically exterminated more than 250,000 disabled people.

thenational.scot/politics/2511

archive.today/2025.04.24-07474
#Autism #Trump #Kennedy #Stealth

So, someone just reached out to me about my autism self-diagnosis guide, but they didn't leave a way to reach them, so I'm posting it here—maybe they'll find it...

Their message:
"""
Issue: Self-Diagnosis Clarification Needed
Hey there,

I just stumbled upon your project, and I must say, it’s super informative—kudos! However, I'm thoroughly confused about the section regarding self-diagnosis in autism. It seems really vague and unfortunately, it raises more questions than it answers.

Validity of Online Tests: You mention taking online quizzes, which seems pretty common. But then you sort of dismiss their validity later. Can you please clarify? Are these tests reputable or are they just useless? I mean, if they’re not reliable, why are they even mentioned?

Process of Self-Diagnosis: The flow from self-diagnosis to seeking a formal diagnosis is shaky at best. There’s no clear path laid out. What does someone even need to do after they think they might be autistic—just show up at a clinic and demand a diagnosis? What if they get laughed out the door?

Recommended Resources: You should definitely link some credible sources or trusted tests people can take if they want to self-assess. Maybe even some professional recommendations! We need solid steps to move forward, not just a vague acknowledgment that the journey is "complicated" or steeped in stigma.

It's really disheartening to see such important content lacking clarity, especially in discussions that mean so much to potential neurodivergent folks.

Can you just take a moment to address these points? It’d seriously make this resource ten times better! Thanks for your time, though it feels like I'm shouting into the void here.
"""

My response:
"""
Hi there, glad you found it informative! To clarify your points...

1. There are a *lot* of online tests to choose from. I include links to (and my scores from) several that are considered reputable. What you're looking for is "directional correctness", e.g. they all point towards a yes or towards a no. The clinical tests I mention are usually administered by a professional, though you can find copies online and fill them out yourself (except for the character interviews of friends and family).

2. The flow from self diagnosis to professional assessment is that *if* you choose to have a professional assessment, you pursue one. A professional diagnosis can open doors to some legal assistance and protections, but it can also be a bad thing (look at the US government currently making a registry of autistic individuals and requesting all their personal medical histories for an example). I quote the UW Autism Center in my writing, as they specifically state that self-diagnosis is valid and a formal diagnosis isn't necessarily more accurate. You won't get laughed out the door if you seek a clinical diagnosis (or if you do, then you should report that clinic, because they're not supposed to do that). Going to a private practice is usually the most direct route, but it can be prohibitively expensive. Most clinics won't do adult diagnoses though, so check first.

3. I link to resources throughout the paper, and it has been peer-reviewed by two psychologists who specialize in autism diagnosis (including one who has written two books on the topic).

Hopefully that helps 💝

Cheers!
—Alice 💜
"""

Bonus observation: The message doesn't read as particularly neurotypical, and the blunt criticisms could be indicative of autistic social traits...or it could be indicative of PUA negging. I'm going to assume it's the former.

The project:
codeberg.org/alicewatson/asd-s

Summary card of repository alicewatson/asd-self-dx
Codeberg.orgasd-self-dxInformation on my journey to get an autism diagnosis, barriers, self-diagnosis, and research.

Learning I’m #ActuallyAutistic has been a long time coming and just knowing that is giving me hope I didn’t have. Talking with my best friends tonight I broke through the failure and despair to realize I don’t know what I’m capable of. That’s a scary feeling but a feeling that has cracked a door open for me. I want to find out what I can do.
#Autism

RFK Jr’s push to create a registry of all people with autism should be setting off alarm bells.

We’ve been here before.

I talk a lot about the Nazi’s Aktion T4 program, because many people forget that they tested the gas chambers on disabled people. We were targeted first because we were seen as expendable. “Useless eaters”. People no one would miss.

Did you know they also created a registry of children born who might have mental or physical disabilities? Midwives were paid to report them to the government, and lists were made.

Creating a registry of autistics won’t “solve autism”. But it could set the stage for something far more sinister.

We must remain vigilant and fight back.

Disabled people are not expendable. Autistic people are not dangerous. Health supremacy is.

#uspoli#hhs#rfkjr

Btw, I'm not in the USA. In fact I've never had the luxury of visiting it.

But if I am diagnosed with #autism, I'd like to point out

1. I have had jobs, and in fact ran a small business for a few years

2. Paid taxes due to point 1

3. I was bad at most sports, but I played them, decidedly average though I was. But neurotypical people can be bad at sport too. Or not want to play baseball.

4. I have written poems, 60k word stories, serial fiction

5. I've been married 18 years.

#autism #dating #actuallyautisic #trauma #PTSD #CPTSD
One of the things that I have learned over time, is that often you will go into a long term #relationship with sort of an agreement or contract of assumptions about the relationship. Or maybe that's just me because I'm on the spectrum.
However at some point, often quite a few years in, especially if your partner has #trauma issues, something will make it impossible to keep the contract/agreement intact. These are often CORE parts of your agreement and incredibly important to you. This can do one of two things. Destroy the relationship because they broke the contract, or you can work together and with yourself to adjust. What no one ever tells you when they say "relationships require work".
Communication is essential, something I've worked hard at and rarely had issues with over relationships, but with trauma it really does involve work and accepting a reality you never actually signed up for. In sickness and in health.
On the spectrum its very easy to be offended and hurt by this breach of trust. However Love is more than an emotion, it is a promise and at a certain point, if its a choice between the contract or love, especially if they are putting effort into it but just can't. Discovering if they are often requiring communication and probing questions to discover their level of effort if depression and dissociation are involved. It may appear to you that they aren't putting any effort in when they are working so hard just to live with depression, anxiety or trauma. Effort, not outcome is what should define a relationship. Equal effort from all.
Love is also a contract and a promise to work hard to make the relationship work. How much of each contract outweighs the other depends on you. Do you sacrifice something very important for the sake of love, or feel betrayed and burn the love promise in the process.
All I know at this point is that no matter the relationship if I was to burn down the love contract, then try with someone else, this same thing would happen in a unique and likely just as painful way. So if you can salvage it and work together on in. You never signed up for this but that was a blank check written in the love promise. You work at it and don't give up. Verify especially from a therapist that they aren't abusing you in some way psychologically, (and physical abuse is right out) but don't assume your next relationship wont hurt just as much later when this "contract breech" happens again.
You are the only thing you can change, not them, its up to you to decide if your bond or their contract agreement is more important to you.
Replied to Wulfy

@n_dimension @CStamp

Do you have any sources for this? I did I little looking around, and I found an article out of UCF that claims

"First, [PPA, a preservative in processed foods] disrupts the natural balance between brain cells by reducing the number of neurons and over-producing glial cells. … too many glia cells disturb connectivity between neurons. ... [It also shortens and damages] pathways that neurons use to communicate with the rest of the body." [1]

But that's directly contradicted by a more recent study from Columbia which suggests

"Children and adolescents with autism have a surplus of synapses in the brain, and this excess is due to a slowdown in a normal brain ‘pruning’ process during development” [2]

On the flip side, you'd have been correct if you'd asserted the correlation the other way around. Eating disturbances, including food refusal and a preference for high-carb foods, is common in people with autism (including me, both now and when I was a kid). [3]

In any event, I haven't yet found “pretty solid evidence" that high-carb diet while pregnant increases autism risk in the fetus. But again, I'd love to know your sources!

[1] ucf.edu/news/processed-foods-m
[2] cuimc.columbia.edu/news/childr
[3] pmc.ncbi.nlm.nih.gov/articles/

University of Central Florida News | UCF Today · Processed Foods May Hold Key to Rise in AutismIn the lab, UCF scientists found exposing neural stem cells to excessive PPA damages brain cells in several ways.
Replied in thread

@CStamp

There is pretty solid evidence that autism is, if not caused, then substantially aided by the human biome.

Specifically, if you eat high sugar, high carb, nutritionally fibre and microbiotic poor diet, children are significantly more likely to develop #Autism.

The big food is not going to be permitted to be regulated in the US, so it's going to be anything but.
I'm guessing big pharma will be off the hook too.

I'm expecting a newly identified woke virus to be responsible for Autism.

Ummm.... @actuallyautistic

Here’s the data the #NIH can collect from your medical history for its ‘#autism database’

Story by Julia Musto, 4/23/2025

Excerpt: "While it remains unclear exactly what data will be collected, under the presented platform NIH researchers could have access to:

- Americans’ #prescription information, including the type of medication and how they are prescribed
- Data collected during medical studies in a multitude of areas and from public and private institutions
- Data collected from peoples’ #smartwatches, which can range from heart health to sleep patterns
- #Claims from private insurers that can cover items such as lengthy hospital stays, #screening and testing
- Data from the Centers for #Medicare and #Medicaid Services, which includes #referrals to specialists, enrollment, #diagnoses, and more "

msn.com/en-us/health/other/her

www.msn.comMSN

When I initially got my #autism / #hsp diagnosis at age 40, so much started to make sense for me. I was exilerated ! I immediately started to tell others in my close circles, searching for understanding for my quirks , but I quickly learnt most people treated autism as a disease, something to be denied, overlooked and even cured! One person even assumed I made it up to get attention, when I had clearly stated I had been analysed by a specialist. ...The general societal system treats autistics either as a liability or a source to extract from. But perhaps a system so steeped in narcissism only treats autism this way because it sees us as a threat. Anything that emobodies the unserious , playful nature so many neuro divergent folks represent is surely to easily tear down a system that represents everything thatvus foreboding and opposite.

'I am horrified': Why autistic people say RFK Jr.'s comments on autism are so dangerous
Reaction from the autism community has been swift and damning after U.S. Health and Human Services Secretary Robert F. Kennedy Jr.'s first press conference last week. And many are asking why we're defining an autistic's person's worth at all.
#autism #health #politics #News #World
cbc.ca/news/world/rfk-jr-autis

msnbc.com/top-stories/latest/r

As @lauren mentioned in a prior post (thanks!), RFK Jr. is now amassing names of people with autism diagnoses for a federal registry, so our PHI can go to antivaccine researchers to prevent our "disease". If this news doesn't raise your hackles, consider the precedents set for the use of registries of disabled people by prior fascist governments, e.g. the Nazis. We are officially in their sights now. We must be prepared.

#autism
#disability
#DisabilityRights
#ActuallyAutistic
@actuallyautistic

MSNBC · RFK Jr.’s autism registry idea raises all kinds of red flagsBy Ja'han Jones