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#Pacing

1 post1 participant0 posts today
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Sp4rkR4t :yes_scotland:

My daughter has a #wordpress site to act as her art #portfolio and prints shop through #printify. This is a bit heavy & slow way to do things but I wasn't well enough to build her anything custom.
I'm now a bit better at my #pacing so was thinking about building her a new static site that plugs into her printify shop.
Anyone have ideas about what toolkits have wordpress import, handle image compression well and integrate with printify? #webdev #spoonies #mecfs

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Mx. Luna Corbden

Here's a little executive function tip based on my Splines Theory.

If you're having trouble starting a complicated and boring task, give yourself time to "load the splines." Splines are just my silly word representing the fact that ADHD and autistic people are more detail-oriented. We have a hard time accessing an idea by its summary, and need to think about the whole system with all its parts (splines) in order to grapple it. This takes time and energy.

But the good news is, reticulating splines is mostly a passive activity. First step, the hardest, is communicating to your brain about what it needs to load.

A few hours ago when I started gathering paperwork for taxes, I felt incredibly overwhelmed and my chronic pain was activated. So I pushed myself to kinda get started (updating my list from last year, opening the email folder, creating some folders on my computer), but then I hit a wall. Under intense overwhelm, I couldn't get started turning those emails into PDFs.

But my brain knows what it needs to do. It just needed time. I entered my passive splines reticulating phase, which can take anywhere from a few hours to a few days. Since I only have a week to get this to my CPA, the sooner I started the loading process, the better. Most of that happens in the background. The hardest part was telling my brain to start, which I did by giving a glance to the body of details I will need to absorb.

Then I went did a couple of hours of paid writing work which my brain normally expects on a Monday (so that went easier). And then back to taxes to see if things were flowing better.

And they are! I still hate it! But now my mind has an understanding of the task and it doesn't seem impossible.

I will work on it until I feel sick and foggy again, then I will pick up tomorrow where I expect it to go even more smoothly.

Here's my 2013 post on Splines Theory of neurodiverse executive function.

#taxes #ADHD #ActuallyAutistic #pacing #MECFS

corbden.com/2013/10/splines-th

www.corbden.comSplines Theory: A Spoons Metaphor for AutismA blog about indie publishing, urban fantasy, and geek culture.
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ItsCarryl

Having a funny time of #energy, #insomnia and renewed desire to do #art. On Christmas Day, I was so tired, I spent the next few days asleep. I’ve had a week of awful #sleep and managing better at last, still maybe 4-9am but awake in the daytime.

Mind going at night seems finally so fed up of #fatigue and not managing to do much, the last year being so lacking in desire for things like art, it’s finally returned with a raging drive. It’d be nice to do more while #pacing it and also sleep.

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Tom Kindlon

🧵
I was very impressed by this new 6-minute video.

I thought I would do a thread of the different versions they have created to accommodate sensory sensitivities.

Firstly here's the full color & background music

youtube.com/watch?v=gKWk99Fsd_

@mecfs

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid #LongCovid #PEM #pacing

1/

YouTubeLife with a Low Battery: Living with ME/CFS (Full Color, with Music)By Bateman Horne Center
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Sofasophia

... Bund, Länder, Gesundheitswesen und Kostentragende müssen sich diesem Thema grundsätzlich und nachhaltig annehmen.

Mehr Infos zu einer besseren Versorgung auch im LEITFADEN (siehe Story-Highlights LCD) von @longcoviddeutschland und der @dg_mecfs «

#curemecfs #mecfsawareness #severeme #postcovidsyndrome #longcoviddeutschland #liegenddemo #mecfs #pacing #leitfaden

-Mia Diekow

instagram.com/p/C-aef2DMSkE/?u

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InstagramMia Diekow on Instagram: "Heute ist #severeMEDay Danke @liegenddemo für die bundesweiten Demos und das Sichtbarmachen dieser schwer kranken und von allen Seiten vernachlässigten Menschen. Politik, Gesundheits-und Sozialwesen dürfen das Thema ME/CFS und die Lücken in der Versorgung insb. von schwer und schwerst Betroffenen nicht weiter ignorieren. Aufsuchende und Tele-Medizin muss für diese Patient*innen zur Regel werden und das vorhandene Wissen über Behandlungen und Medikamente muss verbreitet und genutzt werden. Von Graded-Exercise Training (GET) und anderen aktivierenden Therapien muss für diese Patient*innen kategorisch abgesehen werden, stattdessen muss eine angepasste Betreuung, die Pacing stringent berücksichtigt, angewandt und weiter entwickelt werden. Bund, Länder, Gesundheitswesen und Kostentragende müssen sich diesem Thema grundsätzlich und nachhaltig annehmen. Mehr Infos zu einer besseren Versorgung auch im LEITFADEN (siehe Story-Highlights LCD) von @longcoviddeutschland und der @dg_mecfs #curemecfs #mecfsawareness #severeme #postcovidsyndrome #longcoviddeutschland #liegenddemo #mecfs #pacing #leitfaden"256 likes, 7 comments - mia_diekow on August 8, 2024: "Heute ist #severeMEDay Danke @liegenddemo für die bundesweiten Demos und das Sichtbarmachen dieser schwer kranken und von allen Seiten vernachlässigten Menschen. Politik, Gesundheits-und Sozialwesen dürfen das Thema ME/CFS und die Lücken in der Versorgung insb. von schwer und schwerst Betroffenen nicht weiter ignorieren. Aufsuchende und Tele-Medizin muss für diese Patient*innen zur Regel werden und das vorhandene Wissen über Behandlungen und Medikamente muss verbreitet und genutzt werden. Von Graded-Exercise Training (GET) und anderen aktivierenden Therapien muss für diese Patient*innen kategorisch abgesehen werden, stattdessen muss eine angepasste Betreuung, die Pacing stringent berücksichtigt, angewandt und weiter entwickelt werden. Bund, Länder, Gesundheitswesen und Kostentragende müssen sich diesem Thema grundsätzlich und nachhaltig annehmen. Mehr Infos zu einer besseren Versorgung auch im LEITFADEN (siehe Story-Highlights LCD) von @longcoviddeutschland und der @dg_mecfs #curemecfs #mecfsawareness #severeme #postcovidsyndrome #longcoviddeutschland #liegenddemo #mecfs #pacing #leitfaden".
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